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Posted by anonymous at May 2, 2012
Tags: Health  2012 May  Money

I am a 37 year old mother of 2 dying alone from lupus. I am married to an evil man. My entire family deserted me when I was diagnosed with lupus 2 years ago. My mom, sister, dad and even cousins aunts and uncles called me a liar. They all said that because I looked fine I must be suffering from munchausens syndrome. My own mother said to me that the only illness I suffered from was mental.she said I should stop crying about having lupus and the pain I'm in cause the children of st. Jude have it worse. I should look into their tiny faces and tell them my problems. My own mom even said I should learn that everyone dies. Wow. I hurt everyday from the abandonment. If that wasnt bad enough, then my husbands family turned on me. Same thing, because lupus is invisible, no one believed me. I am on chemo that I can't afford at $12,000.00 per month. I can not get anyone to throw me a fundraiser to help with the cost. Not even my husband. Without some financial help I will have to quit chemo next month as the hospital says no more without payment on the $30,000.00 I owe so far. The lupus will attack my organs and kill me without chemo. I am sick and in pain everyday. Lupus is a horrific disease. My husband and kids could care less about me. Nothing at home has changed. I still do all the chores myself. No one calls or comes by. The only time I leave the house is to go to the many doctor appointments and hospital visits I have, alone. I am so depressed and just wish the lupus would hurry and kill me quickly.


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Comments:
By Cursed at 03,May,12 13:26

Dear friend-
Your story is tragic. I'm not sure what's worse, the fact that you have lupus or that your family are selfish losers? What the hell? Just when you need support and family, this is what they dish out at you? Unbelievable. There is a lupus website- www dot lupus dot org. Please check it out as there are chapters in every state. Perhaps they can give you more guidence? As far as your family goes, you must forgive and forget their insensitivity towards your disease. Do you have any friends that you can confide in that could help you with your doctor's appointments? Don't stress about the hospital bills. They can't deny you treatment- I believe it's against the law? But best to contact the Lupus organization, as they are better informed about what your options may be...
My heart goes out to you dear-
Please try to stay strong, you have to- it's aparently all you have...
Cursed


By anonymous at 04,May,12 06:09

Well it's nothing near horrible compared to cervical cancer. It's 100% manageable and you can live a normal life even with the disease. With our advance med. technology today life expectancy for lupus sufferers would be 8 out of 10 i gather. I have a friend going through the same health condition with you but if you saw her, you'd think she's healthy inside and out. You need to stop hating it and start to take control is what you do. NEVER give up and i feel terribly sorry for your family's indifference towards you. They're selfish pieces of shit and must realize what they're doing before it's too late. I really do hope everything gets better for you. Good luck, honey.


By Gene at 04,May,12 17:02

I checked on the treatment for Lupus. It doesn't mention chemo. I rate this story as false.
By anonymous at 05,May,12 19:46

It seems at least half are false here, maybe more.


By anonymous at 05,May,12 19:48

Money is mentioned too. Sounds like baiting to me. Looking for cash.


By anonymous at 05,May,12 19:49

To be fair, I looked it up too. Lupus is treated by Chemotherapy, stage four, the worst type.


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